Push for ‘out of reach’ medication for rare form of epilepsy Dravet syndrome to be added to the PBS
A young family is fighting a rare form of epilepsy which causes their two-year-old daughter to have life-threatening seizures every two days. Skyler Coghlan, from Mildura in Victoria, suffers from Dravet syndrome, which has no cure and requires drugs that can cost more than $100,000 a year for adults and $40,000 for children. Dravet syndrome is a form of … [Read more…]
